Workpackage 4: Expert Patient Care

/Workpackage 4: Expert Patient Care
Workpackage 4: Expert Patient Care 2017-12-07T14:38:37+00:00

Leader: Prof. Bronwyn Kerr (Manchester)

This Workpackage aims to use the pool of patient and clinician expertise within the network to gain consensus on the format and style of Rare Disease guidelines, as well as produce documents for conditions currently without clear pan-European guidance.